8.30.2009
Not Too Creative
Ryan is doing well physically. He was able to play on Friday which was a big concern for him. He had a blast, helped convert a 3rd and long into a first down at a critical time of the game, he helped his team win the game against John Glenn.
We took Tim back to Malone yesterday - what a great trip. 5 hours of singing worship songs together with Cari and Tim was great. We left him after a few short hours there and drove the five hours home. I miss him this time. Last year, we were not the best of friends but this summer he grew so much spiritually that I truly believe he is seeking God's best for his life now. It's still a battle for him just as it is for me and I admire him for sticking with it.
I saw Clint at church today - it is strange to see him and not spend so much time together. He and his lovely wife are making their lives together and I am proud of the man that he has become. Still, i pray for him daily because I know how hard it can be.
Friday, Tim and I called Pulse FM at the same time trying to win tickets to ND Women's Volleyball (4 tickets)...trying to be caller #6 or #7. I got answered as #6 and he got in as #7 - technically we both won but they only gave it to won of us since we are related. Anyway, we took our volleyball player, Jenna, today after church to see them. Not so exciting but it was actually cool to find that we won SEASON TICKETS not just for the one game. I guess we'll be back!
I love my wife - she is the greatest person in my life and my support when I am down.
So that is it - I love my family - God is good.
I know I have shared a lot of the struggles of my family lately - thank you for praying. I know we are not out of the woods with Ryan yet but things have been looking good and your prayers are cherished - keep up the battle!
8.27.2009
Surprise Surprise
She offered to let us stay and talk to the doc but we all know that he set the bar at 100,000 for playing football and for getting off the drugs so what can he tell us that will help?
He comes in and looks at the numbers and smiles and say "Very good, very good" (in his chinese accent :) - i have not yet found out where he is from in China...my goal for next weeek). I was wondering why that was very good...it did not seem like we were getting anywhere.
"So Doc, is there another test that should be done to see if there is something more going on here?" He tells me that there is nothing else to really do except wait - they will go up in the coming weeks. Next question: "Should we change his diet or give him supplements? Maybe a tranfusion to get him more platelets?"
Again - he tells me that the platelets are good andthen he goes into this long explanation that he had to do two times for me to get but it was about how the platelets are winning and the antibodies are dying at a faster rate then the platelets so we are on the right track. And " oh...just come back once next week for tests and you can play tomorrow night. ok?"
What?
Play football? "But I thought you said 100,000 or at least 65,000?"
The answer, "No, He can play...you are stable now. 30,000 is very healthy but we need to monitor you weekly over the next couple of months til they get to 100,000 then we back down the steriods. you can play"
Needless to say - I am puzzled but Ryan is elated - along with Tim, who gets to see his brother play before he heads to Ohio for the first semester of his sophomore year at Malone Univ.
God is crazy...and great... and mighty...He turns hearts (and medical decisions and conditions) as He wishes and we are just asked to obey Him, love Him and praise Him.
So, I do.
I love you God. I will praise you wherever I go. I wil strive to obey your precepts so that I can honor you more each day. Thanks. thanks. You are so good.
8.20.2009
Longer Ordeal Than We Want
Ryan's platelets are STILL at 14,000...He is starting a daily steroid treatment today and will maintain this until the levels are up to an acceptable measure. The doctor decided to skip the bone marrow test because everything else in his blood work is perfect and the blood smear looks normal and clear (except for lack of platelets). This is the best news so far. Everything that we have learned about this disorder shows that it takes a while to recover from but if it is an "acute" form of ITP then 90% of the people recover completely within 6 months. The steroids should be able to cause the platelets to increase quicker and stronger so that they will be up to acceptable levels before real long (I still don't know what time frame to put on that.
Next up: More blood work (a full panel) on Monday and Thursday of next week.
Side Note: He cannot play football until his platelets are up to 75,000 to 100,000.
Ryan is learning what it means to try to maintain a positive attitude and trust God to accomplish His plans even when they are not in line with his plans! It is hard but he is trying. Pray that he grows through all of this.